Tuesday, February 20, 2018

Same inquiry, different question...

Today we discussed the difference between the following two questions.

Is he (Lennon) getting better?
How is he doing?

Essentially, people are asking the same thing; but the second question is much easier to answer.


  • Is he (Lennon) getting better?
    • This is hard to answer because the short term may appear better, but we know that long-term the outlook is not good.
      • There really isn't a better.  His condition is progressive. It will get worse over time.
  • How is he doing?
    • This question is easy to answer because we can use specific criteria to answer.
      • He's doing as well as can be expected. He had a good day today.  We are back on our normal routine. Today was seizure free. 



Today was a good day for the whole family.  Dad is getting moved back to the day shift. I got to see my students again. Lennon really enjoyed daycare and was happy and talkative when I picked him up this afternoon.  Tonight, the six of us went to eat with our good friend, Johnny, for $2 tostadas at I Don't Care. (If you live in DC, they're definitely worth it!)  Everyone talked about how much better Lennon looked than yesterday. He ate well, he was supporting himself at times, and of course he was happy.  The kid LOVES to eat!

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3 years, 2 months, 16 days (and then some)

It has finally happened.  You've been gone longer than you were here. I miss you every day my beautiful boy.