Tuesday, July 31, 2018

First Summer Hospital Stay

Well, we almost made it through our summer without a hospital stay. I'm not going to lie, I kind of feel like Wichita is inherently tied to doctors of some sort. We spent a long weekend here with our family and the morning we we're going to leave, we had vomiting and seizures, so we brought him to the Wesley ER.

Thankfully we are able to communicate more effectively with Dr. Beltran and Dr. Shah now, so we made it upstairs fairly quickly. When we got here, we we're very happy to see our A team on staff. Dr. Haws, Judy, Beverly, Tiffany just to name a few... Yes, people who know our kiddo and how tricky he can be.

He was swabbed to determine which kind of respiratory infection he had and came back with rhino/enterovirus, which is the same thing he had in April.  Even though we didn't suspect seizures by the time the EEG started, there was nearly continuous seizure activity on the right hemisphere of his brain. We gave a course of three medications before the activity stopped.  We are currently working on the second 24 hour infusion of Argenine. If he stays stable throughout the night, we will get to go home tomorrow.

We may be moving to general PEDS floor tonight, so send some extra prayers that we don't relapse, which is what seems to happen when we go to PEDS before dismissal.  At least there we can snuggle a lot easier!


Love Makes a Family

There is nothing quite like family and I love mine. Throughout the last week, we spent loads of time laughing, causing trouble, and just being lazy with Aunt Rhonda and Bev. I'm pretty sure I want to keep my neice!

Then last Friday we met up with Uncle Al, Grandma and Grandpa Kennedy, Uncle Scott and Aunt Christy and cousin Anson. Grandma Renae made a couple of apprearances as well. This made for a fantastic time! Our hearts are so full!





 

 



Unfortunately, we ended up back in the hospital Monday, but that has its own post.

Ironically, we may never have found part of our family if it hadn't been for Lennon's illness. It was last summer that we were able to reconnect dad with Rhonda.  Since then, we've shared one visit and about a million Marco Polo / Snapchat / Facebook / Duo / phone conversations. This summer, we finally got to meet the rest of her bunch in person. I'm so glad for this opportunity to get the Moody family and the Kennedy family together!

I know I'm probably repeating myself, but seriously... Full heart ! Dinners, Tanganyika Wildlife Park, The Arcade, just relaxing by the pool, it was all wonderful! I can't wait to do it again!

3 years, 2 months, 16 days (and then some)

It has finally happened.  You've been gone longer than you were here. I miss you every day my beautiful boy.