World Mitochondrial Disease Awareness Week is September 19th - 25th, 2021, which makes today Day 1.
I woke up realizing that I'm wrapped in one of Lennon's old blankets. He is never far from me. There has not been a single day where I haven't thought of him. I will always be his mama.
The grief is no longer a battle, it is more like this blanket. It is warm, inviting, comforting, and filled with memories of snuggles. Sundays were always my favorite with Lennon. We would get up before everyone else in the house and sit together while I drank my coffee. When he was healthier, we would sit outside and listen to the windchimes. As he became more fragile, we would sit inside in the rocker or I would just stand beside his bed and rub his feet. A lot of times I'd put on Billy Joel or The Greatest Showman soundtrack.
His siblings still talk about him all the time. They imagine what he would be like. They tell all the fun stories about how ornery and cute he was. The "remember when" conversations are my favorite. He was (and is) so loved!
It has been 844 days or 2 years, 3 months, 21 days since he took his last breath in my arms. It doesn't seem possible, but I know it's true.
Please take some time this week to share a fun story about Lennon. (There are lots to tell!)
Thank you all for reading and being a part of our journey.
