An ongoing tale about the lessons we've learned with our youngest son and his diagnosis with the CARS2 gene mutation...
Monday, April 16, 2018
Upcoming Surgery
At our appointment with the specialists at Children's Hospital Colorado, one of the things that was recommended was a g-tube. This wasn't the first time we received the recommendation, and since we know that Lennon still isn't gaining the weight we would like to see, it makes sense to place one. So to make a long story short, we will go Thursday for a consultation and have surgery Friday. There will be a 24 hour hold for observation, and hopefully, we will be able to come home Saturday or Sunday.
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3 years, 2 months, 16 days (and then some)
It has finally happened. You've been gone longer than you were here. I miss you every day my beautiful boy.
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I leave this year with mixed emotions to say the least. I cleaned out a junk drawer tonight and found an abundance of hospital bracel...
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About this time one week ago, we were walking into a hotel room to kiss our big kids goodnight. I curled up behind Christian as he was rack...
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