We are officially a 501c-3 foundation! More details to come soon!
An ongoing tale about the lessons we've learned with our youngest son and his diagnosis with the CARS2 gene mutation...
Thursday, July 25, 2019
Subscribe to:
Posts (Atom)
3 years, 2 months, 16 days (and then some)
It has finally happened. You've been gone longer than you were here. I miss you every day my beautiful boy.
-
At our appointment with the specialists at Children's Hospital Colorado, one of the things that was recommended was a g-tube. This wasn...
-
Nobody can prepare you for a journey like this. When you're a new parent, you struggle with unfounded fears of worst case scenarios lik...
-
Hopefully, you've read the backstory about Lennon's diagnosis. If not, look for the Valentine's Day entry on the Diagnosis page...