An ongoing tale about the lessons we've learned with our youngest son and his diagnosis with the CARS2 gene mutation...
Sunday, February 18, 2018
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3 years, 2 months, 16 days (and then some)
It has finally happened. You've been gone longer than you were here. I miss you every day my beautiful boy.
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This month has been hard. Those words are an awful understatement. It's so strange to think that Lennon has now been gone longer than...
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I've had this post saved in the drafts for nearly two months. I wasn't sure if I should post it, but since I still feel these thing...
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World Mitochondrial Disease Awareness Week is September 19th - 25th, 2021, which makes today Day 1. I woke up realizing that I'm wrappe...
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