Biggest victory- Lennon is cleared to eat chocolate again! Dr. Welch even spoiled him with 2 thin mints because he wouldn't stop saying, "cookie!"
Biggest setback- The insurance company is being difficult with our request for an appointment with the Mitochondrial Clinic at Denver Children's Hospital.
Goals for Lennon- Make the switch from Keppra to Trileptal and gain weight
An ongoing tale about the lessons we've learned with our youngest son and his diagnosis with the CARS2 gene mutation...
Tuesday, March 13, 2018
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3 years, 2 months, 16 days (and then some)
It has finally happened. You've been gone longer than you were here. I miss you every day my beautiful boy.
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This month has been hard. Those words are an awful understatement. It's so strange to think that Lennon has now been gone longer than...
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I've had this post saved in the drafts for nearly two months. I wasn't sure if I should post it, but since I still feel these thing...
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World Mitochondrial Disease Awareness Week is September 19th - 25th, 2021, which makes today Day 1. I woke up realizing that I'm wrappe...