Celebrate

Let's Celebrate a HUGE Milestone!

In 2019, we have had ZERO transfers to Wesley Children's Hospital for emergency care.  (Yes, we were there in January, but that was for a CPAP trial.)  

Lennon's sleep study has been moved to April 17th.  Hopefully we will have more support for him with either CPAP or BiPAP when he's sleeping.  This should also help increase his lung capacity and improve his ability to breathe independently.  We would love to have him less reliant on supplemental oxygen.

The process has been started to get Lennon an adaptive carseat.  He needs a great deal of head support when we travel, so having an adaptive carseat means that positioning will no longer be a struggle. 

I'm really excited to see how long Lennon can go without another PICU stay.  I won't say that these last few months have been easy or worry-free, but it has been wonderful keeping him home.

Picture for attention. 

Check out his new haircut!