Biggest victory- Lennon is cleared to eat chocolate again! Dr. Welch even spoiled him with 2 thin mints because he wouldn't stop saying, "cookie!"
Biggest setback- The insurance company is being difficult with our request for an appointment with the Mitochondrial Clinic at Denver Children's Hospital.
Goals for Lennon- Make the switch from Keppra to Trileptal and gain weight
An ongoing tale about the lessons we've learned with our youngest son and his diagnosis with the CARS2 gene mutation...
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3 years, 2 months, 16 days (and then some)
It has finally happened. You've been gone longer than you were here. I miss you every day my beautiful boy.
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This month has been hard. Those words are an awful understatement. It's so strange to think that Lennon has now been gone longer than...
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I leave this year with mixed emotions to say the least. I cleaned out a junk drawer tonight and found an abundance of hospital bracel...
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About this time one week ago, we were walking into a hotel room to kiss our big kids goodnight. I curled up behind Christian as he was rack...
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