Biggest victory- Lennon is cleared to eat chocolate again! Dr. Welch even spoiled him with 2 thin mints because he wouldn't stop saying, "cookie!"
Biggest setback- The insurance company is being difficult with our request for an appointment with the Mitochondrial Clinic at Denver Children's Hospital.
Goals for Lennon- Make the switch from Keppra to Trileptal and gain weight
An ongoing tale about the lessons we've learned with our youngest son and his diagnosis with the CARS2 gene mutation...
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3 years, 2 months, 16 days (and then some)
It has finally happened. You've been gone longer than you were here. I miss you every day my beautiful boy.
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At our appointment with the specialists at Children's Hospital Colorado, one of the things that was recommended was a g-tube. This wasn...
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Nobody can prepare you for a journey like this. When you're a new parent, you struggle with unfounded fears of worst case scenarios lik...
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Hopefully, you've read the backstory about Lennon's diagnosis. If not, look for the Valentine's Day entry on the Diagnosis page...
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