An ongoing tale about the lessons we've learned with our youngest son and his diagnosis with the CARS2 gene mutation...
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3 years, 2 months, 16 days (and then some)
It has finally happened. You've been gone longer than you were here. I miss you every day my beautiful boy.
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At our appointment with the specialists at Children's Hospital Colorado, one of the things that was recommended was a g-tube. This wasn...
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I haven't posted for a very long time. It is so hard to put into words how much I miss my little guy. I have mixed feelings about ...
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After several discussions about whether or not to share Lennon's story with the world, we've decided to give it a try. We were fortu...

Looking forward to some ice cream today!
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